Today we heard from Stacy Pike Langenfeld of Rosemount. She is the co-founder (Feb 2018) and President of KrabbeConnect. Most of us present had not heard of Krabbe Disease prior to Stacy's presentation. It was very emotional. To learn more about this disease and the mission, vision & commitment of this organization, visit krabbeconnect.org.
Thank you Stacy for your story and commitment to those living with Krabbe disease!